autism Autism being deprived of solitude long enough will eventually kill me.
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    reedbend
    3 months ago 94%

    I also know not everybody will be fine and be able to cope better if left alone. I will, but it was a long damn journey to get to where I'm able to say that with confidence. If you're somebody who needs to be alone but won't be fine if you are, I see you too.

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  • autism
    Autism reedbend 3 months ago 97%
    being deprived of solitude long enough will eventually kill me.

    I can actually vibe quite bigly and be very animated/engaged, but at the end of the day, I am an introvert, and a certain amount of mental recharge time is **absolutely 100% required** or my mind will stop working right. What I mean by that is, if I am continuously exposed to the presence of "incompatible" human beings (the "compatible" ones seem to be a subset of people with ADHD / ASD / mood disorders), I will literally start showing symptoms similar to dementia, I will progressively lose my ability to speak and understand language, I will eventually start having (boring) hallucinations, etc. All of this is reversible if I am subsequently left the fuck alone, though the cognitive effects can persist for weeks or months after a bad episode. In part because I do tech work which requires keeping a lot of information in mind at once, the above issue renders me unable to work during acute burnout, and unable to predict when or how much I'll be able to work during chronic (but not acute) burnout. Because of this, I am (by some definitions) homeless, don't control my living environment, don't even fully control my diet for various reasons, etc. I'm actually writing this post as a tangent from looking up diabetes warning signs and discovering I have a number, all consistent with each other, all of which slowly got worse at the same rate over the last 5 years of chronic burnout. This is a result of not being able to control my diet or my exercise level (wayyy too fatigued from overstim most of the time). But it's all, 100% of it, a carryover effect of not being able to get enough solitude that my mind can self-regulate sufficiently to be able to do paying work on a regular basis. I lost my home a few years into the burnout and wound up bouncing thru a series of friends. Every single household had human factors that drove me into burnout. It's people who don't know how be still, who are _always_ Doing Something even if they are sitting still - I can never stop perceiving them or being "on guard" in a house with them. It grinds me right down to the bone and then some. Anyway it was just dumb luck of the draw - some percentage of the population I can live with just fine. 3 years into this phase I ended up in an area that's very sprawly, did get a car for a while but not one I'd trust to take more than 10 or 15 miles, you should have seen this deathtrap, it was like a sitcom car, and anyway it died last year. So, I can't just walk to town and work at McDonald's or whatever. Camping options (uninhabited woods) exist but camping in them is illegal (which I've done on a couple desperate occasions). I'm not entirely sure why I'm even posting this, other than to say I made a friend diagnosed with ASD a few years back who has a very similar symptom profile to me, but who is even more sensitive than me, and trapped like this with her own family. I know y'all are out there. You're valid. I know you're trying even if you've been so goddamn tired your eyeballs could melt for a month, 6 months, a year, 3 years. I don't know about you, but I _literally just need to be left the fuck alone_ and I will be fine, and able to pull myself out of the hole in 6-12 months. But that's the problem, this is America, nobody gets that kind of runway unless they're rich (or young and middle class with nice and/or indulgent family). I don't need to be alone, but with 4 alcoholics having a rager in the rest of the house. I don't need to be alone, but with occasional random people in and out of the house. I don't need to be alone, but for only 24 total hours each week in irregular intervals. I need to be able to access solitude / the company only of people who don't fixate my attention with their human presence, whenever I need, for as long as I need. Period. Anyway, I'm legit thankful to live in a society where this is even fucking possible. I'm in North America and I know how to tickle computers. I've been on my ass for a literal decade, but if anybody can finagle a way back from it, it's me. There are a lot of people who started off like I did - lower middle class with bright parents - and who ended up like I did, who beat themselves up relentlessly over it. I went to support groups and I saw how bad they hurt. Fortunately I don't have that problem, but I like to keep myself from developing it by doing shit like meditating, and watching videos of South Asian metalworking factories where dudes pour molten steel into molds while barefoot, and don't wait for the dust to settle in the lead oxide ball mill tumbler before opening the door and taking in a nice big lungful. Eh, that's probably enough for now. I see you and love you, obligate introverts.

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    autisticandadhd AuDHD what do you all do for money?
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    reedbend
    3 months ago 100%

    This should probably be my job description, but life got in the way before I speciated from generic backend software engineer. I'm doing something analogous, in that I've been putting together a 'stack' on top of Proxmox and super portable hardware so that I can self-host nearly everything I need on my own hardware while not having a permanent place to live.

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  • autisticandadhd AuDHD what do you all do for money?
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    reedbend
    3 months ago 100%

    webshit

    anybody need a Wordpress site built, rehabbed, or tilled & weeded? help a homeslice not be homeless

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    Aspergers reedbend 3 months ago 92%
    getting a job (or doing gig work) when not fully recovered from burnout

    Background: I've been in burnout at some level for 10 years. Chronic the whole time, sometimes also what I would describe as semi-acute to acute for many periods as well. My current situation is that I won't have a place to live in about a month, and I need to raise my income, but I can't predict or guarantee that my brain will actually be functional enough to work. (I do tech stuff... right now I'm a web monkey but I'm trained as a software engineer, haven't written nontrivial code in several years tho) In my case I'm worried that getting a job and then losing it because my brain went on strike for a few weeks/months could potentially kick off a blockbuster depressive episode. I get those lonnnnnnng slowwwwww deep shutdown, lose 50 IQ points as you stare into the deadlights depressions. One more of those could quite literally kill me. That said, my med stack works and my mood is controlled better now than at any point in my life, so, I need to worry about this less. My current income is thru gig work and I want to increase that rather than get a "job," but here it's the same problem, if I land a client and my brain goes AWOL, it's going to be a problem. I have put a ton of work into my hardware+software stack though, and self-host nearly all my own shit, which is a big advantage when you're permanently overwhelmed, because you save big bucks on hosting bills, and the open source upgrade treadmill is a lot slower than with corporate software. Anyway, enough about me. Anybody want to share stories or tips?

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    autism Autism Need noise cancelling headphones recommendations
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    reedbend
    3 months ago 100%

    Sony's current cheap models are a lot better than the XM3s. I know that pressure sensation, I'd given up on all noise canceling headphones because I hate it, but tried a pair of (cheap!) Sony WH-CH720N and that sensation is 98% reduced, it only appears a little if there's a ton of bass noise in the environment. But even then, it's not nearly as bad as most other (older) NC headphones I've tried.

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  • autism Autism Need noise cancelling headphones recommendations
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    reedbend
    3 months ago 100%

    Aka "musicians earplugs" ... which can be premade, or if you actually want the best fidelity, custom molded to fit your actual ear canal! Had a gf who was a post-punk musician once, she absolutely swore by her custom pair.

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  • autism Autism Need noise cancelling headphones recommendations
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    reedbend
    3 months ago 100%

    Hi, I would recommend the Sony WH-CH720N as punching way above their weight for a $100 pair.

    I am someone who didn't like noise canceling headphones which I tried before, since older models all seemed to cause a sensation of "pressure" on my eardrums which felt like having dead meat behind saran wrap smushed up against them. The Sony WH-CH720N have about 98% removed that sensation, which means I can actually wear them for more than 10 minutes.

    The noise canceling feature isn't perfect - you can of course still hear some noise - but it's about as good as the Bose Quiet Comfort 3 pair which cost a LOT more than the Sony.

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  • adhd ADHD memes How does one even live like this?
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    reedbend
    5 months ago 100%

    They feel the same about me when I decline the opportunity to get shitfaced drunk and banter over 17 games of "Mexican train dominoes" for the 59574th time.

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  • adhd ADHD memes How does one even live like this?
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    reedbend
    5 months ago 100%

    The only person I have to babble at has level 2 autism and can only process a finite (and very small) number of words per day before she combusts 😭

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  • autistic_adults Autistic Adults emergent properties of the syndrome
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    reedbend
    5 months ago 100%

    I lose the ability to open most mail once I have processed too many qualia per unit time

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  • autistic_adults Autistic Adults emergent properties of the syndrome
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    reedbend
    5 months ago 100%

    hah sadly no, was paying for the pot electronically, thought to cash the check at the nearby CU for gas money!!

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  • autistic_adults Autistic Adults emergent properties of the syndrome
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    reedbend
    5 months ago 100%

    also is anyone here familiar with the symptom "going without banking for 4 months" because they locked your web account and so, that was it

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  • autistic_adults Autistic Adults emergent properties of the syndrome
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    reedbend
    5 months ago 100%

    so much Potentially Dangerous Mail from agencies, bureaux, and corporations (people [amoral]) 😬

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    Autistic Adults reedbend 5 months ago 100%
    emergent properties of the syndrome

    who else has the forbidding and incomputable Pile of Mail 💀 mood: currently opening mail 1 week to 4 months old because I know there's a $7 check in it somewhere that'll pay for gas money for my friend to drag my ass around town and to the pot shop

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    adhd ADHD memes How does one even live like this?
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    reedbend
    5 months ago 100%

    when self-hating people who've learned a little about genetics and evolution pipe up with "why are we even still in the gene pool" sadposts ... this is why. overall, this style of thinking is a net positive to the proliferation of Homo sapiens, and every now and then even a net positive to the people who embody it.

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    Autistic Adults reedbend 9 months ago 100%
    Noise-canceling headphones have improved.

    I'm crossposting this widely because every single person with a noise sensitivity who previously tried noise-canceling headphones and found them not useful should know: it might be time to give the technology another shot. This is a plug for a product. I'm not getting paid for it. I'm actually broke and couchsurfing and unable to work (until now maybe????) due to noise sensitivity, so if this info changes your life, I will put my tip jar in my profile after I post this :) ## The story I got a pair of Sony WH-CH720N for Christmas this year. I had noise-canceling headphones on my wish list, but very low down, as previously I'd tried a couple pairs, including the expensive and highly-rated Bose QC III, and found them very lacking. My experience with older headphones: the noise canceling was pretty good, but they caused a pressure sensation on my ears which I can only describe as like having a piece of meat behind saran wrap pressed against my eardrum. They also used to be a lot heavier than the WH-CH720N is. Both these factors made them very hard to wear for any length of time (for me) and greatly limited their usefulness. So, I put the Sony model on my wish list more because I need a solution for wireless-from-my-laptop Zoom calls and don't have one, and less for the noise canceling feature. ## My experience I'm _really_ impressed with these headphones, especially at the $99 price point. The noise canceling feature isn't an absolute miracle, but it's very very good, equal or better to the Bose QC III which retailed for more than 3x the price back when it was new. The weird ear pressure sensation is _drastically_ better than with older noise canceling headphones. It's not nonexistent, and it does tend to flare up with certain bass sounds (like people stomping on hardwood floors), but it's waaaaaaaay better than older models I've tried, to the point where I can wear the Sony model for hours without fatigue from ear pressure. The WH-CH720N headphones are not durable. They do seem a bit delicate. This is their weak point. But they _are_ very lightweight!! This makes it much easier to wear them for extended periods. If you need to carry them around, maybe there is some kind of headphone case that can be found? I will be looking, and if I find one, will post in the comments on the orig post at lemmy dot ml slash c slash autistic_adults. So anyway. Hopefully this helps somebody out. Personally, my noise sensitivity is destroying my life - keeping me penniless and semi-homeless due to inability to work - and getting these 'phones for Christmas changed my entire idea of how noise canceling tech might help me out of this situation, after previous disappointing experiences.

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    autisticandadhd AuDHD Being Black and autistic is awful
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    reedbend
    9 months ago 100%

    I just wanted to say I read everything and you're not crazy to be wondering what the fuck.

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    Autistic Adults reedbend 9 months ago 100%
    the sensation of being unable to contain the knowledge in my head

    What is this??? I know some of you have experienced it, because on very rare occasion it's come up in the past on other autism discussion groups I've been a part of. Sometimes somebody will make a post about burnout and say something like "the knowledge just fell out of my head" when talking about trying to work/think about complex topics while burnt out. In my case, once I get too burnt out from overstimulation or nonstop social exposure, I get cognitive effects that last for days or weeks afterwards. In some sense, I get "dumber." But this isn't that, exactly, though I'm sure it's related. Background, and an example: I do web & software development for work. I also live in a place which is a poor fit for my sensitivities, so I've been in chronic burnout for years, and I'm pushed further into acute high-intensity (as in, I become "lower functioning") burnout a few times a year. I find that once I pass a certain point in burnout, I get to the point where I need to do a complex task, such as some web dev work, or for another example, filling out a bunch of government forms to keep some critical benefit or another flowing while I figure this all out. And I get inertia. But the inertia *feels* different than the usual inertia. The only way I can describe it is that it feels like in order to do the task, it's going to "rope in" knowledge of so many related things, that my brain realizes it's going to become overloaded and just sort of freezes up and deadlocks at the prospect. These are tasks that require a good deal of focus and thinking, but which are well within my ability when I'm able to meet my sensory needs. Anyway ... just wanted to make a thread for speculation and chatting about this, I guess. What is it? Demand avoidance? Conditioned response? Creepily accurate emotional representation of some kind of actual brain overload failure condition??

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    autistic_adults Autistic Adults “No Way Out Except From External Intervention”: First-Hand Accounts of Autistic Inertia
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    reedbend
    10 months ago 100%

    This phenomenon, evoked by Too Much Shit Going On Around Me, is in some sense destroying my life.

    I mean, the alternate path I've been on because of sensory sensitivity + autistic inertia has taught me a ton of valuable shit over the past half decade, so if I ever manage to get into a better situation I'll be so much better prepared than I ever was before, now that I understand this stuff... but I'm trading years of my life for the insight, years spent locked in by inertia for a great portion of almost every single day... plus a not-small measure of damage to my health from all the fucking drugs I have to take in order to not go absolutely insane, become completely dysregulated, be constantly highkey suicidal etc in such a scenario.

    Also, a tangent, but I really wish there were fewer typos in this paper, this kind of research is utterly critical to getting a better living situation for millions of people on the spectrum, and the typos don't help that. K, done complaining about my pet peeve.

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    Aspergers reedbend 10 months ago 100%
    “No Way Out Except From External Intervention”: First-Hand Accounts of Autistic Inertia www.ncbi.nlm.nih.gov

    cross-posted from: https://discuss.tchncs.de/post/6713283 > > This study is unique in considering difficulty initiating tasks of any type in real life settings, and by gathering qualitative data directly from autistic people. Four face-to-face and 2 online (text) focus groups were conducted with 32 autistic adults (19 female, 8 male, and 5 other), aged 23–64 who were able to express their internal experiences in words. > > > > [...] Participants described difficulty starting, stopping and changing activities that was not within their conscious control. While difficulty with planning was common, a subset of participants described a profound impairment in initiating even simple actions more suggestive of a movement disorder. Prompting and compatible activity in the environment promoted action, while mental health difficulties and stress exacerbated difficulties. Inertia had pervasive effects on participants’ day-to-day activities and wellbeing.

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    Autistic Adults reedbend 10 months ago 100%
    “No Way Out Except From External Intervention”: First-Hand Accounts of Autistic Inertia www.ncbi.nlm.nih.gov

    > This study is unique in considering difficulty initiating tasks of any type in real life settings, and by gathering qualitative data directly from autistic people. Four face-to-face and 2 online (text) focus groups were conducted with 32 autistic adults (19 female, 8 male, and 5 other), aged 23–64 who were able to express their internal experiences in words. > > [...] Participants described difficulty starting, stopping and changing activities that was not within their conscious control. While difficulty with planning was common, a subset of participants described a profound impairment in initiating even simple actions more suggestive of a movement disorder. Prompting and compatible activity in the environment promoted action, while mental health difficulties and stress exacerbated difficulties. Inertia had pervasive effects on participants’ day-to-day activities and wellbeing.

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    reedbend
    10 months ago 100%

    I realized that I do the 'tell everyone' stage because I'm trying to recruit a body double so I'll stick with the project 😅

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  • autistic_adults Autistic Adults Yo, how bad does autistic burnout get before it becomes something more serious?
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    reedbend
    11 months ago 100%

    In my case if I go weeks on end with no break from human presence, I will start hallucinating muffled conversations and fan-like drones etc at all times when there isn't sufficiently loud complex noise, and also I'll see "bugs" constantly in the corner of my vision, like jump scare - there's a spider on the wall, oh wait no there isn't type thing, but 50 times a day. also can get lost parsing sensory input in shared spaces, allowing people to sneak up on me (usually impossible due to the 3D hearing which I can never shut off) and give me a jump scare.

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    Autistic Adults reedbend 11 months ago 83%
    Yo, how bad does autistic burnout get before it becomes something more serious? old.reddit.com
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    autisticandadhd
    AuDHD reedbend 11 months ago 95%
    shout out to anybody facing homelessness due to neurodivergence

    cross-posted from: https://discuss.tchncs.de/post/5546920 > As someone facing homelessness myself due to issues beyond my control, I just wanted people to know they're not alone. > > These conditions are real, and people's misunderstanding - and willful refusal to understand - wrecks lives. > > I hope you can get to a safe place where you can exist in your own skin in peace.

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    Autistic Adults reedbend 11 months ago 100%
    shout out to anybody facing homelessness due to neurodivergence

    As someone facing homelessness myself due to issues beyond my control, I just wanted people to know they're not alone. These conditions are real, and people's misunderstanding - and willful refusal to understand - wrecks lives. I hope you can get to a safe place where you can exist in your own skin in peace.

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    adhd ADHD Acquiring medication now takes up nearly an entire day every month (because of the DEA)
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    adhd ADHD Pharmacogenetics Tests
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    reedbend
    11 months ago 100%

    Thank you for posting something this personal. These communities (as a former reddit user) have been incredibly helpful to me thru stories just like this. If we can get them self-sustaining on Lemmy they will help a lot of others.

    Back to topic, I've not done an extensive pharmacogenetic test, but I did take one to confirm that I'm a CYP2D6 poor metabolizer, which has a huge effect on function of something like 25% of all drugs in existence! It's definitely informed my treatment since getting that information.

    Edit: haha, speaking of ADHD I left a shorter version of this comment 2 months ago. the more the merrier..

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  • adhd ADHD memes The Chair™
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    reedbend
    11 months ago 100%

    try 25 virtual desktops running 2 browsers, one of which with multiple profiles for various broad topics ... my "main" session alone has 75-80 windows at present 😃

    edit: installed an extension to find out: in main session, 378 tabs across 84 windows. seems like a low number of tabs per window perhaps, but I organize topics into a window, then related topic-windows into a dedicated browser profile session if they're long-lived, and windows/sessions are grouped into virtual desktop by top-level topic more or less ... so my fediverse/threadiverse session has 35 tabs in 7 windows in only 1 virtual desktop.

    edit 2: I theme each browser profile differently to (mostly) tell them apart by eye

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  • autisticandadhd
    AuDHD reedbend 11 months ago 100%
    consensus/discussion driven to a fault?

    cross-posted from: https://discuss.tchncs.de/post/5236945 > I'm curious if anyone out there reading who lives with ADHD and/or ASD w/executive dysfunction ... when it comes to tasks that aren't just your own but that involve (or are needed by) others, for example household tasks when living with others ... do you find that you actually _need_ consensus and/or discussion on the topic of tasks in order to get them done? > > What I'm realizing is that for me, part of executive dysfunction means I don't have the internal watchdog that keeps track of stuff I need to do in relation to others, and just personally speaking I cannot rely on (or be tormented by) guilt as a way to work around the lack of a watchdog. > > The one thing that _does_ work for me is _talking about it_ with the people involved, especially if they are people I respect or care about. Either coming to consensus, or at least maintaining shared understanding of the shared space / task list / etc. For some reason, the process of coming to a shared-state perspective on shared effort, and understanding how my responsibilities impact others and at what time others need me to have completed them, is like sprinkling magic pixie dust on the task-item in my brain that allows me to remember it exists _at all_ once it's 5 days later in the week or whatever. I still suck at scheduling and prioritizing and whatnot, but at least I remember the damn task exists and am trying to get it done! > > The reason I've figured all this out is kinda grim, long story short I ended up on my ass about 10 years ago, and lost my home about 7 years ago, and then people took me in... and those people don't do the above. They don't discuss things and they don't build consensus or shared state, they just _do_ stuff. And it's utterly and completely paralyzing because I spent the first 3 decades of my life living with people who _did_ discuss things that affect others around them, and now my entire repertoire of human behavior is based on the premise that people attempt to keep each other informed like this, and that's just not the case for a great number of people. > > And that process of communication or shared-state rehashing, which I thought all humans engaged in because both my parents did and almost everybody I lived with early in life did, is absolutely critical to wallpapering over my lack of ability to keep track of / remember that tasks exist, especially as my level of overwhelm gets high or my energy gets low. > > What really made this sink in was remembering that my dad had endless conflicts with a kid of his from another marriage when he would go to visit, because she also doesn't communicate like this, and just like me, my dad was also absolutely critically dependent on it in order to be able to do anything at all really. In fact that's how I realized that he had a very similar neurological profile to me. In some ways our behavior is starkly alike and now I understand why. > > BTW, that dad who almost certainly would be diagnosed with the same dreamy 'primarily inattentive' adult ADHD that I have today, got a Ph.D., retired as a Lt. Colonel in the Air Force, and went on to lead a small college language department and then have a long retirement doing occasional work in advanced linguistics. He later decided to learn Italian, and succeeded, in his 70s. Every time in his life when he had either autonomy and resources to do his own thing, or external structure + social glue that agreed with him, he was able to excel. Without those conditions, he would drift badly and become depressed. Understanding this has helped me understanding myself. My dad was a poor parent in a lot of other ways, but his ability to succeed when he had enough pieces of the puzzle does give me hope.

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    ADHD reedbend 11 months ago 100%
    consensus/discussion driven to a fault?

    I'm curious if anyone out there reading who lives with ADHD and/or ASD w/executive dysfunction ... when it comes to tasks that aren't just your own but that involve (or are needed by) others, for example household tasks when living with others ... do you find that you actually _need_ consensus and/or discussion on the topic of tasks in order to get them done? What I'm realizing is that for me, part of executive dysfunction means I don't have the internal watchdog that keeps track of stuff I need to do in relation to others, and just personally speaking I cannot rely on (or be tormented by) guilt as a way to work around the lack of a watchdog. The one thing that _does_ work for me is _talking about it_ with the people involved, especially if they are people I respect or care about. Either coming to consensus, or at least maintaining shared understanding of the shared space / task list / etc. For some reason, the process of coming to a shared-state perspective on shared effort, and understanding how my responsibilities impact others and at what time others need me to have completed them, is like sprinkling magic pixie dust on the task-item in my brain that allows me to remember it exists _at all_ once it's 5 days later in the week or whatever. I still suck at scheduling and prioritizing and whatnot, but at least I remember the damn task exists and am trying to get it done! The reason I've figured all this out is kinda grim, long story short I ended up on my ass about 10 years ago, and lost my home about 7 years ago, and then people took me in... and those people don't do the above. They don't discuss things and they don't build consensus or shared state, they just _do_ stuff. And it's utterly and completely paralyzing because I spent the first 3 decades of my life living with people who _did_ discuss things that affect others around them, and now my entire repertoire of human behavior is based on the premise that people attempt to keep each other informed like this, and that's just not the case for a great number of people. And that process of communication or shared-state rehashing, which I thought all humans engaged in because both my parents did and almost everybody I lived with early in life did, is absolutely critical to wallpapering over my lack of ability to keep track of / remember that tasks exist, especially as my level of overwhelm gets high or my energy gets low. What really made this sink in was remembering that my dad had endless conflicts with a kid of his from another marriage when he would go to visit, because she also doesn't communicate like this, and just like me, my dad was also absolutely critically dependent on it in order to be able to do anything at all really. In fact that's how I realized that he had a very similar neurological profile to me. In some ways our behavior is starkly alike and now I understand why. BTW, that dad who almost certainly would be diagnosed with the same dreamy 'primarily inattentive' adult ADHD that I have today, got a Ph.D., retired as a Lt. Colonel in the Air Force, and went on to lead a small college language department and then have a long retirement doing occasional work in advanced linguistics. He later decided to learn Italian, and succeeded, in his 70s. Every time in his life when he had either autonomy and resources to do his own thing, or external structure + social glue that agreed with him, he was able to excel. Without those conditions, he would drift badly and become depressed. Understanding this has helped me understanding myself. My dad was a poor parent in a lot of other ways, but his ability to succeed when he had enough pieces of the puzzle does give me hope.

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    adhd ADHD memes v thoughtful suggestion, I had not considered
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    reedbend
    11 months ago 100%

    This is because most therapists (in my loooooong experience) have absolutely zero understanding of executive dysfunction :|

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    reedbend
    11 months ago 100%

    Not the guy you're responding to but I made a comment upthread that I found success by developing interlocking habits, or in some cases it's fair to say rituals rather than habits ... little sub-habits that guide you to the main one you want to develop, or briefly reward you when you've completed it. Items or processes in your environment which cue you and remind you that the habits you want to do even exist.

    For example, 2 sub-components of what finally got me to remember to meditate (or skip, but intentionally 😒) were writing a brief journal entry of my observations after each sit with a piece of chocolate, and having a couple little succulents with a light on a timer by my altar, so that every time I'm in the room during the day the altar area, with a couple plants I need to keep an eye on for their health, is lit up to draw me in if I'm ready.

    Doing things this way is very intentional and thus exhausting, and it requires a lot of trial and error to figure out the little sub-habits that all work together and that actually work for you (since some inevitably won't), and hell as somebody explaining it I've only had a couple big successes with it because I often don't have the energy/brainpower to figure all this out ... but man when I can pull it off, it works sooo well.

    I'm a huge believer in "prosthetic environments" which I believe is a concept Dr. Russell Barkley came up with, he annoys me a little but as an ADHD research he's like 85% dead on target about this stuff, and thinks deeply about it.

    Good luck!

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    reedbend
    11 months ago 100%

    I've been trying to develop this habit for 7 years because I know how good it is for me :(

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    reedbend
    11 months ago 100%

    I'm the same way. It's ironic given that I posted this meme, but when I can use them lists really help.

    In my case, if I travel somewhere for 3 days, when I get back, many of the routines I had at my original location will have evaporated no matter how long I had them, so I made a list, and have been trying to build a routine-recovering routine. It's slow going for other reasons but I've been very slowly working on it for 5 years now and it has helped at times when I've needed it (and remembered it exists).

    Here's my additional tip to OP's tip: if you are someone who holds habits like a sieve holds water, you have to be even more intentional about forming habits, and form multiple interlocking habits that cue you. I'm at a very stressful time in life right now so it's hard for me to remember details but like, I wanted to develop a daily meditation habit. But what I had to do in order for it to actually stick, was develop a ritual out of interlocking habits: getting my tea, lighting some incense, doing the actual meditation, once finished immediately having a rewarding sip of tea, dusting off my cushion, writing a brief journal entry afterwards (this is the one that tipped it over the edge for me for some reason) with a piece of dark chocolate. I also put little succulents by my altar with a lamp on a timer that comes on in the morning, so just the lit-up presence of plants which I need to tend every few days draws me toward the altar if I've forgotten or postponed my sit.

    You have to be like this with everything that doesn't come naturally. Yes, it's extremely intentional, which is exhausting. Yes it's a lot of hit or miss, trial and error, because of all the little sub-habits I just described above, there will be a number you try which end up not working for you. So you have to be persistent at messing around with your habit-sculpture long enough to find a permutation which works for you, and being persistent at things like this can be very difficult for people like us. In that case, I recommend sheer desperation, it helps with the persistence.

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    reedbend
    11 months ago 100%

    Bullet journaling is fscking amazing for this, unfortunately after many years of hard experience, I've come to understand that I'm so receptive to environmental stimuli that I just haven't been able to maintain such a system in a chaotic environment ... I need a certain level of baseline peace / recharge in order to be able to stay on top of systems like these. But they do work so well when I can manage it

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    reedbend
    11 months ago 100%

    In my case, I decided to cut Big Tech out of my life which led to dropping Google Calendar in favor of an open source solution, which works exactly the same except for GCal's one teensy little proprietary extension: reminders.

    Living without that snoozable reminder stack for the past 4 years has been like walking around with a hole in my side.

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    reedbend
    11 months ago 100%

    alone and in silence being the key part of this, after having input shoved thru my brain by other 🦍s for the last seven years whether I had any desire for it or not

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    reedbend
    11 months ago 100%

    Yes! My hearing separates all the sound-streams and places them in 3D space at all times and I can never turn it off, yet I can't cope when there's music + TV on at the same time or too many speech streams. People who leave the TV on and then put music on absolutely boggle my mind, it's so unpleasant

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    Autistic Adults reedbend 11 months ago 100%
    who else's brain takes a long time to "warm up" or stabilize after waking?

    I suspect this probably varies across the entire population to some degree, but for me it feels like my senses and my mind aren't fully "bound together" properly when I wake up, and it takes a while of being conscious, QUIETLY, for them to come together and be functioning right. This process takes far longer if I'm in a state of serious/chronic burnout, up to several hours. If I skip it and jump directly into activity, things usually stabilize quicker, but in a crappy muddled way, and much of my day can be off, I feel dumber, forget things, lower threshold for confusion/distress from random events, etc.

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    reedbend
    11 months ago 100%

    Also, I suspect one could go round and round all day on whether or not this is "social anxiety" but at the end, I'd hope a good therapist would be able to take this info at the kernel of "why" and develop useful techniques to work around it. So far I have no luck, but I've only gone thru .. uhh... 2 shrinks since I realized this, and one was a terrified intern.

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    reedbend
    11 months ago 100%

    I'm curious if you have basically no ability to filter out nearby human stimuli like me.

    Now that I started digging into this I realized that I also get easily mesmerized by televisions and the like, more so when I was a kid but still occasionally as an adult.

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    Autistic Adults reedbend 11 months ago 100%
    the experience of being perceived

    I've been lurking/participating in forums for people on the spectrum long enough that I see "issues with being perceived" type posts pop up every so often. This is relieving to me because I have issues like that, and they are difficult for anyone who doesn't experience them to understand. So it's nice not to feel alone in that way. I have noticed a definite pattern after months of reading every one of these posts I came across. I think there are two forms of "my desire not to be perceived is causing me distress / avoidance / ineffective behavior" and would like people's thoughts on this. 1. Some people **fear being perceived,** or have a great deal of what they very clearly understand as anxiety around being perceived. I have a little of this going on but it's by far the lesser portion of my issues being perceived.* 1. Other people seem to have much more trouble with the **cognitive load of being perceived.** This is the much bigger problem for me. Once another human being is in the same space, some part of me becomes continuously aware of their presence, and devotes a non-negligible amount of energy & mental bandwidth processing ... things ... related to that. It's often enough to make me less effective at what I'm trying to do. This can eventually _lead_ to anxiety, but I'm fairly sure the _primary_ emotion here is not anxiety but... avoidance? exhaustion? at the processing demand required to exist in the same space with others. It is also a much larger issue when I am already burnt out or tired. But the end result is the same as if the culprit were simply "anxiety:" I'll avoid doing things I need to do if the cost seems too much. I think part of the "cognitive load" issue I just described is in fact directly related to my executive dysfunction. Human beings doing things nearby are one of the most distracting stimuli to me (I'm diagnosed ADHD as well). So if I'm trying to do a task, and somebody shows up nearby, even if they aren't interacting with me, it's quite possible for my ability to perform at the task to get noticeably worse once they are there. As you can imagine, experiencing this enough times leads to emotions, which leads to a "complex" as they liked to call it in the 70s. In my case, I'm fully convinced there are both biological reasons for my bullshit - after all, I get mesmerized by televisions too, something is clearly going on - and conditioned responses that aren't helpful. Would be nice if I could keep a shrink long enough to get some CBT for the latter, but that's not how it works in the USA if you're poor. Anyway I would love to hear any other thoughts or experiences having to do with Being Perceived as it applies to us! ... \* If you're the type of person who occasionally hurries to get around a corner before someone walking a ways behind you can round _their_ corner and continue having you in sight, or if you're the type of person who will occasionally beat a hasty retreat when someone is arriving who has nothing to do with you, you probably understand this type of perception anxiety to some degree.

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    reedbend
    11 months ago 100%

    The reason bullet journaling can work so well for ADHD/ExecDys types who take to it, is because bullet journaling is a structure of interlocking habits with an element of ritual to it, while "remember to look at the important list crumpled in my back pocket" is not.

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    reedbend
    11 months ago 100%

    The really fucked up situation is when you're stuck in this mode to the point of severe burnout because of your environment which you cannot escape in any reasonable amount of time.

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    reedbend
    12 months ago 100%

    Thank you so much for writing this! I read it all. I definitely do the combined arms thing, but need to devise more paths which lead back to it and more ways to smooth out the experience... I am a big believer in habit sculpting.

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    reedbend
    12 months ago 100%

    It certainly can, though I think there's a low level which I can tolerate for a long time if not already burned out ... assuming I ever get to that state again...

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    Buddhism reedbend 12 months ago 100%
    anger as a reason to avoid meditation

    Please forgive me if this is not a proper space to discuss the long journey from starting point (no meditation) to desired goal (daily meditation 80% or more of days) for someone living in an individualist and undisciplined culture; Like many others in such a situation I suspect, I go thru spells where I don't meditate. I'm still trying to understand why, in order that I can eventually stop doing so. Even right now I'm playing a game of some sort with myself by making this post, but that's actually beside the point. I finally noticed one correlation: the spells line up (sometimes) with periods where I'm "angry at the world" in some sense ... feel bitter disappointment at dreams which didn't come to pass for some unjust or unaccepted reason, etc etc etc. This turns into sullen (or hot & fiery, depending) resistance, and then I don't meditate for a while until I get over it. But sometimes this takes months, and anyway, it's the exact opposite of what I need to be doing in such a situation. So ideally I could come to understand this and dispense with the whole pointless resistance part. Anyway. Just posting to paint myself into a corner so that I have to stop skipping, but, I am curious if there is anyone else out there who has noticed this.

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    Aspergers reedbend 12 months ago 88%
    wish there was more traffic??

    cross-posted from: https://discuss.tchncs.de/post/4450613 > I encourage anyone who wants to see more traffic, and has the resources to do so, to create a throwaway account and confess some personal shit on here!! chances are if you do, somebody else out there will end up feeling less alone. that's exactly what I'm doing 😃 > > before realizing I'm on the spectrum I've been to some support groups for other conditions as well as going thru DBT, and one thing I realized is that sometimes it's cool to have a space to just put your stuff on the table, and everybody else has done so to some extent as well, and you can approach each other as human beings with less pretense because they already know your stuff unlike everyone in "real life" who you're trying to impress. > > anyway. try it out! and then ghost the account in a few days/weeks/months, or don't. > > but we all know adults on the spectrum have basically no resources. getting some traffic going here could turn this into one.

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    Autistic Adults reedbend 12 months ago 100%
    wish there was more traffic??

    I encourage anyone who wants to see more traffic, and has the resources to do so, to create a throwaway account and confess some personal shit on here!! chances are if you do, somebody else out there will end up feeling less alone. that's exactly what I'm doing 😃 before realizing I'm on the spectrum I've been to some support groups for other conditions as well as going thru DBT, and one thing I realized is that sometimes it's cool to have a space to just put your stuff on the table, and everybody else has done so to some extent as well, and you can approach each other as human beings with less pretense because they already know your stuff unlike everyone in "real life" who you're trying to impress. anyway. try it out! and then ghost the account in a few days/weeks/months, or don't. but we all know adults on the spectrum have basically no resources. getting some traffic going here could turn this into one.

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    raisedbynarcissists
    anybody else realize decades later you can't tell whether people like you or are just pretending?

    I think in my case this is a combination of 2 factors: having very self-absorbed parents (I would classify one as non-N and one as N) who really just didn't give a crap about my interests or inner life most of the time, plus one symptom of my being on the spectrum is that one very specific input wire is pulled and I have trouble 'just knowing' whether somebody likes/dislikes me assuming they have any talent at pretending to be friendly and want to hide any dislike. Like I think most people have a built-in that does that for them and mine is unplugged. Also my parents were very intelligent, and unlike a lot of Ns or N-adjacents, they were nice enough to pretend to give a crap when they were being nice, and like .......... now I can't tell when other adults of sufficient intelligence are doing it these days? and I don't even have a warm/cold sense unless they give clues, and it takes a whole lot of effort to watch for them and doesn't come naturally? Does this make sense? It sounds like an anxiety/shame complex under a very thin veil but I promise it's not, because I don't ... really react to things in that way?? I realized over the past 5 years or so that I really just cannot temperature check people's like/dislike toward me unless they are very clear about it, like if I start to have questions about somebody I have to sit down and think it out and it still doesn't compute, and since most of the people in my daily life are (good hearted) snarky types who have been thru a lot of trauma, everybody is nice but keeps their cards close to the vest and I can never have *any* good sense of where I stand. It's always a big question mark. "Just talk about it" doesn't work because these people don't *do* that, and I suppose neither have I ever outside of a romantic relationship. (edit: and my 3ish closest friendships) I hate this but in some sense I'm not even trying to complain, this is just how it is, people make films about this culture, it's literally because civilization has only developed this far, I guess I'm just wondering how common it is to have this exact problem after being raised by Ns, orrrr if it's maybe more the autism. K THANKS BYE

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    AutisticWithADHD reedbend 12 months ago 50%
    Is it a common autistic experience that just the presence of another human being puts your nervous system on alert? https://old.reddit.com/r/aspergers/comments/16x1eg0/is_it_a_common_autistic_experience_that_just_the/
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    autistic_adults Autistic Adults Is it a common autistic experience that just the presence of another human being puts your nervous system on alert?
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    reedbend
    12 months ago 100%

    Had to crosspost this one (I'm not OP) because this has literally been destroying my life for 7 years, I'm unemployed and technically homeless (couchsurfing) because of it 🥲

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    Autistic Adults reedbend 12 months ago 85%
    Is it a common autistic experience that just the presence of another human being puts your nervous system on alert? old.reddit.com
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    Autistic Adults reedbend 12 months ago 100%
    Self-Determination Theory stimpunks.org

    > Self-determination Theory (SDT) is… — a model, a macro theory, of human motivation. Interesting article (granted with perhaps a bit of academic idealism) with a number of interesting links branching off.

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    autisticwithadhd
    Autistic with ADHD reedbend 1 year ago 100%
    estimating for freelance work

    anybody have tips or tricks? I'm specifically interested in estimating hours of labor to do a given skilled task ... I'm one of those "time isn't real" people, have definite time blindness and the like. personally I think I'm just gonna have to sit down and develop some kind of formula out of BS and guesswork, and then use it every time I need to estimate for a proposal, track its performance and amend it as necessary. this post brought to you by the project where I am going over budget despite multiplying my initial estimate x3 (and having that accepted).

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    Autistic Adults reedbend 1 year ago 100%
    literally me
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    autisticwithadhd
    Autistic with ADHD reedbend 1 year ago 100%
    literally me
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    Autistic Adults reedbend 1 year ago 100%
    'Askers' vs 'Guessers' https://archive.md/X7qeZ

    Time to dust this one off again: > Let's say your husband or wife has a friend who will be coming to your city for two weeks on business. This friend writes to you and your spouse, asking if you can put him up while he's in town. Has this person committed a gross violation of etiquette? Whether you answer yes or no may speak to whether you're an Asker or a Guesser--the two personality types described in a three-year-old Web comment that has lately taken on a second life as a full-on blog meme.

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    autistic_adults Autistic Adults How are you guys surviving adulthood?
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  • "Initials" by "Florian Körner", licensed under "CC0 1.0". / Remix of the original. - Created with dicebear.comInitialsFlorian Körnerhttps://github.com/dicebear/dicebearRE
    reedbend
    1 year ago 100%

    Couldn't really say for sure, I'm still recovering from my nth case of covid being unexpectedly far worse than all cases before it, and realizing that the friends I'm staying with aren't reeeeeally my friends, and nearly every surviving member of my biological family (which isn't many) is some sort of confirmed scumbag, so if I get really sick I'm up shit's creek without a paddle, no one will take care of me and nobody gives a fuck 🤷

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  • adhd ADHD Pharmacogenetics Tests
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  • "Initials" by "Florian Körner", licensed under "CC0 1.0". / Remix of the original. - Created with dicebear.comInitialsFlorian Körnerhttps://github.com/dicebear/dicebearRE
    reedbend
    1 year ago 100%

    A few years back during a grueling med search I pestered my shrink for a CYP2D6 genetic test and sure enough I'm a non-metabolizer ... it's played into a number of med decisions since then.

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  • adhd
    ADHD memes reedbend 1 year ago 95%
    Perspective
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    adhd
    ADHD memes reedbend 1 year ago 96%
    adhd gothic

    a tumblr classic!

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    "Initials" by "Florian Körner", licensed under "CC0 1.0". / Remix of the original. - Created with dicebear.comInitialsFlorian Körnerhttps://github.com/dicebear/dicebearAU
    Autistic Adults reedbend 1 year ago 100%
    My Unified Field Theory Of Shutdown And Meltdown bix.blog

    (not my blog, just came across it)

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    "Initials" by "Florian Körner", licensed under "CC0 1.0". / Remix of the original. - Created with dicebear.comInitialsFlorian Körnerhttps://github.com/dicebear/dicebearAU
    Autistic Adults reedbend 1 year ago 71%
    Taken in by addicts who then cause intractable severe burnout

    Normally I tend to write massive walls of text, but it's Tuesday morning, I just woke up, and the drunks I live with - my friends, who give me this place to stay, as I ended up here after losing my home due to autistic burnout - are already partying. And I'm just so fucking sick of it. The nonstop chaos. Adults in their 30s, 40s, and even their parents in their 60s and 70s acting like idiot frat boys. The inability to maintain a sleep cycle, or ever know who the fuck will be in the house. Not knowing if the bathroom was suddenly "cleaned" at 2am due to a puke scene like something out of The Exorcist, or whether it was just because some drunk got a wild hair and decided to remove all the towels in the middle of the night. There is so much more, of course, including the usual NT bullshit of blaming me for my problems when in reality, I _know_ what I need to do in order to be healthy, and I'm consistently blocked from it by people who have devoted their lives to substance abuse. The worst part of it all is watching their kids get the short end, because their parents are more concerned with being drunk than with being present. I love those kids. And there's very little I can do about it - doubly so because their drunk parents leave me so fucking burned out that I just don't have the energy. As for me personally, I've been stuck like this for **four years.** I've almost built a way out - slowly and painfully collected all the gear so I can work from my car (I do remote tech, but am completely unable to think at the house). My car is so close to exploding in a million pieces it's not even funny, so that's the next challenge. All the gear works, but if that car dies I'm right back to square one with no safety valve to get the fuck away from these people. I guess this became a wall of text, but my main intent was to kick off a vent thread for anyone who's been in this situation.

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